The short version of her story for new blog readers is that Lexi (who is the daughter of my best friend from high school) was born with a condition called Smith Lemli Opitz (SLO). SLO babies are unable to make the right amounts of cholesterol, which is essential nutrient in cell development in our bodies. The range of developmental problems ranges from mild to very severe. I am happy to report that Lexi is developing extremely well and is one of the happiest 3 year old kids you'll ever meet!
If you would like to learn more about ways to support research for SLO families then I encourage you to visit Lexi's fundraising site. Thanks for taking a few minutes to learn about where I'll be spending my upcoming weekend celebrating life's blessings!